COLUMBIA LIBRARIES OFFSITE HEALTH SCIENCES STANDARD HX641 22794 RC311 .As7 Tuberculosis familie RECAP Tuberculosis Familie. .a Their Homes A Study The ^Association of Tuberculosis J3inics 4. and the Committee on the Prevention of Tuberculosis of the I Charity Organization Society New York City iqi6 /■^^^^.>;i: .l^ C3n A^l Columbia (inttierssftp tntJ)eCttpofl^rtt»gork CoUege of ^})|>siictansi anli burgeons; Hihvarp Digitized by tine Internet Archive in 2010 with funding from Open Knowledge Commons http://www.archive.org/details/tuberculosisfamiOOnewy Tuberculosis Families in Their Homes A Study The Association of Tuberculosis Clinics and the Committee on the Prevention of Tuberculosis of the Charity Organization Society New York City iqi6 0^1 Foreword THE present study was begun in 19 13, and continued inter- mittently over a period of two years. The length of time required for its completion and its final presentation has been due to two causes : first, that the study was carried on sim- ultaneously with the regular routine work of the Executive Office of the Association, so that it was not possible to give full and undivided attention to it ; second, to the unavoidable delay result- ing from the necessity of submitting it for final approval to the various workers more or less directly interested in it, either through its conduct or because of their association with the agen- cies caring for the families included in the study. It is unfortunate that the general impression left by the study as a whole is more or less pessimistic. Part II of the report deals with avowedly "difficult families" more or less unhelpable from the outset. Success could hardly be expected to follow in the wake of the most expert social and medical care, all things con- sidered. It is only fair to remind the reader that successful re- sults zvere obtained by social and medical agencies with other helpahle families under their care during the same period of time. Unquestionably the technique of both medical and social workers is improving from year to year, but the problem of the apparently unhelpable family still remains unsolved. Whether private agencies will ever be able to handle these families effec- tively, or whether their care should be put directly up to the pub- lic authorities, is a question that should receive more careful con- sideration than it has in the past. The report has been criticised as lacking in constructive sug- gestions for the care of tuberculosis families generally. It should be noted that the study was undertaken primarily to let a little light, if possible, into dark places which are being encountered by auxiliary organizations to the tuberculosis clinics of New York City, and to bring home to them the futility of their attempting to handle these "difficult" families with the hmited facilities for in- tensive social work at their command. It also attempted to point out to them what might be considered a reasonable expenditure of the not inconsiderable funds which they raise for tuberculosis work. Because of the possibly discouraging effect the report might have on those whose background is insufficient to enable them to properly interpret the reasons for the apparent failure in dealing with the families included in this study, it has seemed wise to limit its distribution to professional workers. It is offered to them with the sincere hope that it may prove of some slight help in meeting those difficult problems arising out of a combination of chronic disabling disease and inherent lack of capacity. As to the omission of broader constructive recommendations regarding the care of dependent tuberculous families by social agencies possessing all the necessary equipment for adequate fol- low-up work, it would seem that their policy must be determined largely by the attitude of the health authorities as to the degree of control they are willing to exercise over the avowedly danger- ous foci of infection, the active cases living under improper home conditions. The final responsibility here undoubtedly rests with the medical profession. Until they are willing to sanction the wholesale segregation of dangerous tuberculosis carriers, as they have sanctioned similarly the segregation of other infectious, pre- ventable disease carriers, public authorities and private agencies ahke can do little but mark time. The principles underlying the control of tuberculosis, segregation, supervision and adequate re- lief have been recognised for a decade. There has been lacking only the willingness to follow the application of these principles through to its logical conclusion, when this means for supervision and relief, largely increased appropriations of either public funds or private contributions, or for segregation, the readjustment of our emotional outlook on the rights of the individual. Part I A Comparative Study of 74 Relief Families and 64 Non-Relief Families NEW YORK CITY'S register of tuberculous individuals is approximately 35,000. The annual crop of new patients averages 22,000 each year. Twenty-seven thousand six hundred and sixty-four of all these pass through the clinics ; 14,063 find their way in and out of the hospitals; 8,918 die. Excluding the amount spent by subsidized private institutions over and above the per capita payments made to them by the City, we can summarize the annual cost ^ of the care of tuberculosis to the city of New York as follows : INSTITUTIONAL ( CHIEFLY MEDICAL CARE) By the City $1,730,262.96 By private agencies 60,710.90 $1,790,973.86 HOME CARE ( MEDICAL AND SOCIAL AND relief) By the City . . ., $377,31 1.09 By private agencies 310,031.10 687.342.19 $2,478,316.05 This total of $2,478,316.05 represents a capital investment of $49,566,321. Stated in other terms, if the annual cost of tuber- culosis in dollars and cents were distributed upon a per capita basis, EVERY MAN, WOMAN AND CHILD OF THE FIVE MILLION AND MORE LIVING IN THE GREATER CITY OF NEW YORK WOULD BE TAXED FORTY-SIX CENTS YEARLY. 1 See Appendix, pages 76 and ']'], for detailed statement. 5 The acid test for determining the value of this expenditure for the care of tuberculosis is to be found in the death rate, which, as we know, has steadily declined year by year, a greater declination than has occurred in the general death rate during the same time. INSTITUTIONAL CARE VS. HOME CARE For testing the relative value of the two methods of care we have as yet no accurate measuring rod. Many factors combine to invalidate morbidity statistics. The true incidence of tuber- culosis cannot be definitely determined until we are sure of com- plete registration returns. We are, however, pretty thoroughly committed to the institutional form of treatment, and our chief aim should be to use this method in the most intelligent and effi- cient way in order to secure the best returns. A certain amount of home care seems at present inevitable. Some go further and say it is desirable. Funds to support this home care come largely from private sources, either general re- lief agencies or special tuberculosis funds. The general relief agencies have to face tuberculosis as one of the complex factors in the problem of dependence which they are trying to handle. The wisest expenditure of the special tuberculosis funds is still a matter for discussion. It was with the hope of throwing some light upon the use of those special tuberculosis funds, raised by auxiliaries to tuberculosis clinics, that the present study for the Committee on Homes was undertaken. As we know, by far the largest demands made upon these special tuberculosis funds are for relief. The character of the homes into which such re- lief goes is naturally of particular interest to the almoners of these funds. The various forms of institutional care of tuberculosis are fairly well crystallized. There are hospitals, sanatoria, homes and preventoria. Institutions in each class are graded according to the medical and social type of case they are to receive, and there is one admitting agency, the Flospital Admission Bureau, which sets the standard to which each type must conform. There are as many forms of home care as there are agencies furnishing it or individuals representing these agencies doing the actual work. It is not the aim of this report to hold a brief for either form of care, institutional or home, as opposed to the other. To do so in our present stage of development would be to court unanswerable arguments from either side proving that €ach and both are indispensable under certain conditions. But it is a plea for some concerted attempt to standardize the types of home care on a basis which will recognize the fundamental needs and limitations of these dependent families in which tuber- culosis is a factor — or in these tuberculous families who have become dependent, according to the point of view. HOME CARE DEPENDENT ON HOME CONDITIONS Admitting at the very start the thousand and one social and economic threads with which the medical side of tuberculosis is inextricably interwoven, we must nevertheless realize that the prevention and control of tuberculosis is our particular task, just as the prevention and cure of dependency is the task of organized philanthropy, or the improvement of work conditions the task of organized labor. In the long run we shall accomplish far more by sticking to our last. At certain points where the tasks over- lap (vide the home care of tuberculosis) we should at least base our treatment on a common knowledge of fact, and a recognition of mutual responsibility. Home care, to be effective, presupposes a knowledge of home conditions. If the elemental requisites for a decent home are lacking, the time, effort and money expended upon home care of tuberculosis cases cannot be expected to produce results. That much of our laboriously raised tuberculosis funds have been spent on makeshift families in makeshift homes is equally true, which is chiefly responsible for the present-day discouragement of the almoners of these funds. For, as the tuberculosis work has been extended and new cases discovered, the demands for relief have increased. Where it has not been possible to augment such a fund it has been spread out a little thinner so as to include more recipients. After a time some have been dropped because they would not respond, because they seemed hopeless, because nothing could be done with them, or for them. STUDY FOR COMMITTEE ON HOMES Three years ago a joint "Committee on Homes" was ap- pointed by the Committee on the Prevention of Tuberculosis and the Association of Tuberculosis Clinics to make a study of homes where there was tuberculosis. With medical records of clinics going back for five years and social records of relief agencies extending back indefinitely, it was felt that a study of these rec- ords would bring to light facts regarding the social, economic and physical background of these families which would help con- siderably in arriving at a diagnosis of the underlying causes of their condition of dependency and of the relation of tuberculosis thereto. Records of patients were taken from the active files of sev- eral clinics. In the first group were included those who at any time since admittance to the clinic had received aid through the clinic or auxiliary relief fund. The second, or control group, in- cluded those who had never received relief from the clinic or any known relief agency. Eighty-one clinic patients were included in the former group — seventy-nine in the latter. For the purpose of this study, fractional families and single men and women were excluded. By fractional families is meant other than normal families of parent or parents and children, e. g., a man and nephew, a deserted woman living with her mother's family. There remained 74 families who were known to have re- ceived relief and 64 who had never been known to receive relief, and who will hereafter be referred to as non-relief families. These 138 families were distributed amongst the various clinics as follows : the 74 relief families were registered at the follow- ing clinics: Bellevue, 26; H. D., Chelsea, 32; H. D., Harlem Ital- ian, 16. The 64 non-relief families were registered at the follow- ing clinics: Bellevue, 10; H. D., Chelsea, 2; Mount Sinai, 35,- Presbyterian, 15; H. D., Stuyvesant, i; St. Luke's, i. 8 The preponderance of relief families in certain clinics and non-relief families in certain others should not be ascribed to the racial character of the particular district covered or to the na- tionality of the family studied, the detail of which appears later. The relief cases at the clinics mentioned were selected for study primarily because of the fact that organized women's auxiliaries attached to these clinics had made possible more extensive relief work for these particular cases. The study of these relief families was arbitrarily discontin- ued with the completion of 74 cases because of the large amount of work involved. The selection of the 64 non-relief families at various clinics was determined chiefly by the completeness of the records available for such families and the length of time they had been known to the clinics. METHODS OF STUDY A special record form was prepared which summarized and classified all available information to be obtained from the rec- ords of the clinic and the social or relief agencies. The housing conditions past and present were noted, the physical conditions past and present of each member of the family, also the physical and mental defects, work-history and earning capacity and the kind, source and extent of relief. The information from the clinic record was obtained by the assistant to the Executive Secretary of the Association of Tuber- culosis Clinics, a graduate nurse of wide experience in the work of the tuberculosis clinics and thoroughly familiar with the vari- ous types of patients and their homes. vShe was thus capable of interpreting the medical data on the clinic records and was equally alive to the importance of noting accurately whatever social and economic data were available at the clinic. All records were then referred to the Social Service Ex- change to learn what other agencies, if any, had known these families, and records of the social agencies were obtained, addi- tional information contained in them was added to the study rec- ord, and an attempt was made to compare, collate and finally summarize for each family the facts contained in the records of both medical and social agencies. This was done by three peo- ple, each working on a separate group of relief families, the Sec- retary of the Committee on the Prevention of Tuberculosis, a member of the staff of the School of Philanthropy and the Execu- tive Secretary of the Association of Tuberculosis Clinics. An additional exhaustive study of the methods of social care was made by the staff member of the School of Philanthropy for her particular group of 35 relief families. It was not practicable to extend this intensive study to the other groups of relief families owing to the length of time required, but it seems reasonable to conclude that the findings for this group are equally applicable to the other groups. Whatever conclusions are offered as a result of this study are offered as indicating tendencies rather than as arbitrary statements of fact. Some of the records, both medical and social, afforded only the most meagre kind of information ; others were obviously inaccurate; other voluminous ones, while extending over a considerable period^ yet had long lapses of time, when the family was lost sight of, and during which there was no recorded information available. Certain lines of inquiry had to be abandoned in the final sum.mary because of the inadequacy or unreliability of the facts noted or of their interdependence on certain other facts which were not available. Thus the information as to the amount of institutional care was of little or no value because it was so ob- viously incomplete. In some instances depending solely on the statement of the family, all the available information on this point was complicated by the fact that the institutional sojourn had not been continuous, patients going in and out of institu- tions two or three or more times, so that the length of stay had but slight bearing on the final outcome so far as the individual patient or the involvement of his family was concerned. The significant fact stood out boldly — the casualness of the institu- tional care received by these people. So the attempt to throw any light on the question of house infection had to be abandoned because of the incompleteness of 10 the records, few recording anything more than the number of cases occurring in a given house, the individual apartment being seldom noted. The social and economic data regarding the non-relief fami- lies were naturally scanty, the clinic record being the sole source of information. As these families had never asked aid they had been chary of giving information, and it had not been easy for the clinic nurse to extract it along these lines. Thus again the attempt to summarize for purposes of comparison the find- ings of the two groups of relief and non-relief families was lim- ited by the necessity of confining such a summary to facts available for both groups. OBJECTS OF THE STUDY This inquiry had four objects: First : To show the background, the constitution, the quality of fibre, so to speak, of those families under clinic care who are regarded specifically as tuberculous families, who are partially or entirely dependent and for whom special tuberculosis funds are being called upon to furnish material relief. Second : To contrast with these dependent families other families under clinic care who thus far have taken care of their own tuberculosis, who have escaped the shoals of dependency, in order to see in what way they dififer from the group of dependent families. Third : To point out deficiencies in both the medical and social treatment of dependent families with tuberculosis. Fourth : To suggest possibilities for the employment of special tuberculosis funds which will bring in the largest ultimate returns. If, in our study of methods of treatment, undue emphasis appears to have been put upon the social agencies' technique and the medical agencies let off too lightly, it should be remembered that we have been analyzing and criticising the professional work of our medical agencies (or clinics) since the beginnings of the 11 Association of Tuberculosis Clinics, and we shall continue to do so. We know only too well where we compromise with our ideals, where we fail. A certain social responsibility is also ours. A knowledge of the experience, the mistakes, the responsibilities of others will help us to a clearer vision of ourselves. SCOPE OF THE STUDY Information on the following points has been tabulated and summarized for both the relief and non-relief families : 1. Nationality. 2. Housing Conditions. 3. Tuberculosis History. 4. Status of Wage-Earners. 5. Occupation and Wages. 6. Income. For the relief families, the period covered by the record of the social agency was noted as well as the character of relief given, whether it was temporary, intermittent or continuous for any length of time. NATIONALITY The nationality of the two groups of families studied ^ is given as a matter of general interest, but it is not claimed that it bears any relation to the general incidence of tuberculosis throughout the city. The preponderance of certain nationalities is easily traceable to the character of the district in which the particular chnic was located from which the clinic records were chosen. Thus the Irish and the American born characterize the Chelsea clinic district on the middle west side. The Italians were found chiefly in the northeastern portion of Manhattan, known as Little Italy, and covered by the Harlem Italian Clinic, while all three nationalities are to be found in Bellevue district. The 1 See Appendix, page 59. 12 Russians were found principally in Mt. Sinai district, the uptown Hebrew quarter. In the majority of instances both the father and mother were of the same nationality ; where they were of different nationality that of the mother was noted. HOUSING The relation of housing to tuberculosis, while generally acknowledged, has not always been easy to define. We know that bad housing conditions, overcrowding, insufficient light and air, lower physical resistance and breed disease. We know that the economic strain under illness breeds poverty and lowers the standard of living. Cheaper rents usually mean poorer living quarters, so that bad housing follows in the train of prolonged sickness. Whichever be the prime factor, granted that bad hous- ing and tuberculosis are both present in a given case, there can be no question as to the danger of the infection spreading to other members of the family. It is, therefore, pertinent to the present inquiry to compare the housing conditions of the two groups. The 74 relief families comprise 425 individuals, of whom 164 are adults and 261 (61%) are children under 16. The 64 non-relief families comprise 321 individuals, of whom 216 are adults and 105 (32^%) are children under 16. Rec- ognizing how prone to infection are young children living in contact with a tuberculous individual, the proper housing of the group of relief families becomes doubly important in view of the fact that there are proportionately nearly twice as many children under 16 in this group as in the non-relief group. But we find that over half of the relief families are living in two- and three-room apartments, as against a little over a fourth of the non-relief families who are similarly housed.^ The consequent overcrowding undoubtedly falls heaviest upon the children in the relief group. If horrible examples are wanted they may be had. Thus we find in the relief group : 1 See Appendix, page 60. 13 No. of No. of Persons per Rooms in Household Apartment One family, Italian 8 2 Two families, Hungarian (living together) . . 10 3 One family, Italian 9 3 One family, Italian 9 3 One family, Italian 7 3 One family, Italian 7 3 One family, United States 7 3 One family, Italian 10 4 One family, Italian 10 4 One family, Irish 10 4 In the non-relief group : One family, Russian 7 3 One family, Russian 7 3 One family, Russian 8 4 An attempt was made to note the number of so-called dark rooms.^ The report of the home conditions was in every in- stance made by the clinic nurse, who is usually unfamiliar with the technical legal definition of a dark room. Her statement, however, that a room was dark, or dim, means that these rooms in her opinion were unfit for ordinary living or sleeping pur- poses. As these reports were made by several nurses, variations in standard due to the personal equation would balance each other. In the 70 homes of relief families there were 48 dark rooms in 30 apartments. In the 63 homes of non-relief families there were 52 dark rooms in 28 apartments. That is, 425^% of the re- lief families were exposed to the danger of living in dark rooms, as against 44% of the non-relief families. On the other hand, con- sidering the total number of rooms occupied by each group, we find that 20% of the rooms occupied by the relief families were dark, as against 19% of those occupied by the non-relief families, while the average person per room was for the relief families, 1.8, and for the non-relief group, 1.2. 1 See Appendix, page 61. 14 Comparing the two groups according to the size of the apart- ment occupied/ we find that over 50% of the relief famihes were housed in 2- and 3-room apartments, 33% in 4-room apartments, 7% in 5-room apartments. On the other hand, only 25% of the non-relief families were living in 2 and. 3 rooms, 43% were Hving in 4-room apartments, 18% in s-room apartments, 10% in 6-room apartments, 3% in 7-room apartments. Comparing the rentals^ paid by the two groups for the same size apartment, we find that the non-relief famihes were in many instances paying a higher rental for the same size apartment, from which we may assume that they were occupying a higher grade of apartments. The general condition of the homes as regards their cleanli- ness was classified as Good, Fair and Bad.^ Over one-fifth of the homes of the relief families were characterized as Bad. From the nature of things it was to be expected that self- supporting families would be living under better housing condi- tions than dependent famihes. But the living conditions of some of the relief families are not only relatively less good, they are positively bad. The futility of attempting to treat tuberculosis in homes such as these would seem to be self-evident. TUBERCULOSIS HISTORY A comparison of the amount of known tuberculosis infec- tion existing in the two groups of families * brings out several significant facts : first, the much greater incidence of tuberculosis in the relief families, amounting to 1.86, as against 1.17 in the non-relief families ; second, the greater number of wage-earners affected in the relief families, 31% of the total cases in these families being adult males, as against 17.8% of the cases in the non-relief group — or, comparing the number of wage-earners hav- ing tuberculosis, living and dead, with the total number of wage- earners in the group,^ we find that 58% in the relief group are or have been tuberculous, compared with 21% in the non-relief 1 See Appendix, page 60. - See Appendix, page 62. 2 See Appendix, page 63. 4 See Appendix, page 64. 5 See Appendix, page 65. 15 group ; third, the proportionately larger number of women and adult children with tuberculosis in the non-relief group; fourth, the large number of children under i6 in the relief group who have become infected, as contrasted with the negligible number infected in the non-relief group. But the story is only half told until we add the facts regard- ing the thoroughness with which the physical examination of the families has been made.^ It would appear that the medical supervision over the relief families is much closer than over the non-relief families, inas- much as only 20% of the individuals in the former group have not been examined, while 65^% in the latter group have not been examined. Our previous assumption as to the extent of tuberculosis in these families must therefore be modified by our ignorance as to the real physical condition of these individuals who have never been examined. Presumably, all definitely ill per- sons were detected, but the amount of preventive work which might have been done, particularly in the non-relief families, is clearly evidenced by the large proportion of children under 16 who have never been examined. EFFECT OF TUBERCULOSIS ON ECONOMIC STATUS Classifying the families according to the tuberculosis con- dition or status of the wage-earners^ we find that 35% of the relief families were widows' families, as against 14% of the non- relief families (including two families where the man was a deserter). Coupled with this fact is the additional handicap un- der which the relief families are laboring; viz., that in 43.7% of the families where the man is living he is ill with tuberculosis, as compared with 21.8% of the non-relief famihes where the man is living. Summarizing the work history of the members of the two groups ^ we find that in the 21 relief families where the man is living only 4 men are working at the same occupation with the 1 See Appendix, page 66. ~ See Appendix, page 65. 3 See Appendix, page 67. 16 same wage as formerly, while 7 are not working, and the remain- ing 10 are working irregularly at less remunerative jobs; 17 women are supplementing the family income by doing unskilled work, chiefly cleaning, at an average wage of from $4.00 to $6.00 weekly. Seven of these women are themselves tuberculous, as are 3 of the remaining 4 who are not working. In the 12 non- relief families where the man is living, 3 are not working and 3 are working irregularly. Information is too meagre to attempt a comparison with their previous earning capacity for the remain- ing 6. Only I woman in these 12 families is working as janitress with rent free. Only i woman was tuberculous and she is dead. In 5 of these families the income is supplemented by adult chil- dren who are working, 2 of whom are tuberculous. In the 22 relief families where the man is dead from tuber- culosis, 15 women are working, 6 of whom are tuberculous. In addition, 3 women who are not working are tuberculous. One woman is dead from tuberculosis. Six of the families have 7 adult children working, while 3 children under 16 in these fam- ilies are also contributing to the support of the family, i of whom is tuberculous. In the non-relief families where the man has died from tuberculosis, i woman is tuberculous and 2 adult chil- dren are working, i of whom is also tuberculous. In those families where the man is living and not tuberculous, we find in the 27 relief families 19 of the women tuberculous, 2 of whom are dead. Fourteen are working, 9 of whom are tuberculous. In 8 families the income is supplemented by the children's work. In the 43 non-relief families, all but 10 of the women are tuberculous. Six only are working, 5 of whom are tuberculous. In 18 families the income is supplemented by the children's work, all adults with one exception. Five other adult children are tuberculous and not working. In the families where the cause of the man's death is un- known or he has deserted, we find in the 4 relief families 3 of the women, although tuberculous, are working; also i adult child who is tuberculous. In the 8 non-relief families 4 of the women 17 are tuberculous, 2 of whom are working. In 6 families, 13 adult children are working, 5 of whom are tuberculous. Three other adult children are not working and are tuberculous. It would seem that the economic pressure is greatest upon the women in the relief families, many of whom are tuberculous, and upon the adult children in the non-relief families. In the first instance, this means that the children in these families are likely to suffer both physical and moral handicap because of their exposure to infection and lack of proper care. In the second instance, it means that adolescent children, young men and young women, constitute the barrier between their families and semi- dependency, and are enduring a strain under which some have already broken and which may result in the ultimate break-down of these others. OCCUPATION AND WAGES It would seem natural to suppose that a higher earning capacity in the non-relief families had insured a standard of living sufficient to enable them to take care of their own tubercu- losis, but one of the most interesting and unexpected facts brought out by a comparative study of the occupation and wages of the relief and non-relief families is that both belong, generally speaking, to the same wage-earning groups. Classifying the families according to the wages of the man, whether living or dead,^ we find that in over half the families in either group the man earned less than $15.00 per week — in 63^/2% of the relief families, in 59% of the non-relief families. In the former group, in 12% of the families the man earned $15.00, in 9% over $15.00. For the remaining famihes (15%) no information was available. In the non-relief group, one only was said to have earned $15.00 per week; 9% were earning over $15.00. In over one- fourth of the famihes (29%), no informa- tion was available. Presumably their earning capacity was over $15.00 per week. In four of these it is known that the men were owners or part owners of stores or shops. The question 1 See Appendix, page 68. 18 of regularity of employment has not been considered, owing to the lack of sufficient data. That in many instances the income from the man's work was neither regular nor sufficient may be inferred from the large number of families with the man living in which the income was supplemented by the work of women and children under i6. The income from the work of adult children ^ has evidently contributed materially towards the maintenance of the economic independence of 45% of the non-relief families. Thus we find, out of a total of 64 adult working children living in 29 families, 31% are earning under $10.00, 21% earning from $10.00 to $14.00, 5% earning $15.00, and 9% earning over $15.00. Twelve per cent, who have formerly worked are no longer working, seven of whom are tuberculous. Twelve of those who are working are also tuberculous.^ No information was available regarding 20% who are known to be working. In 21 relief families, 25 adult children are working, 20 of whom are earning under $10.00 per week. No information was available regarding the remaining 5. Four of the adult work- ing children in this group are also tuberculous. The classification of occupations into skilled and unskilled has been more or less arbitrary. Under the former classification was included the various tailoring processes, the trades, such as painters, carpenters, stonemasons, plumbers, horseshoers, fac- tory hands, clerks and bookkeepers, chauffeurs, electricians, etc. Under the latter was included peddlers, laborers, drivers, porters, longshoremen, waiters, etc. No attempt was made to classify the work done by women. In the relief group 49 women, with few exceptions, were doing laborious unskilled work — washing, office cleaning and janitress work. The highest weekly wage was $9.00 for cleaning. The average wage was from $3.00 to $6.00. One woman worked on artificial flowers, earning $1.00 weekly; 3 on feathers, earn- ing from $3.00 to $4.00 weekly; 5 worked in factories, earning from $3.00 to $6.00. 1 See Appendix, page 68. - See Appendix, page 67. 19 In the non-relief group, only 9 women were working, 4 as janitress, 2 at cigar-making, i as a milliner, i at photography and I sewed, the highest weekly earnings amounting to $8.00. Of the II children under 16 in the relief families who were working, i with tuberculosis was working as a farm hand for $1.00 a week and his board, another as an electrician at $4.00 a week, I in a factory at $5.00 per week. This was the highest wage earned in the group. The others were shining shoes, sell- ing papers, or working as office or errand boys. It is evident that the pressure of dependency has forced these women and children to take up the burden of family support, but nearly one-half of these women are themselves tuberculous. In nearly 15% of these families, children under 16 are working. They have been exposed to infection, their resistance to disease has been impaired by unfavorable living conditions and they go into a dead-end job for the sake of the $3.00 or $4.00 they can earn to-day. From such sowing do we reap our harvest of "cases" as the years go by. In the 64 non-relief families only i child under 16 was work- ing as an office boy and he was tuberculous. But 19, nearly one-third of the 64 adult working children in this group, are tuberculous, 7 of whom have already dropped out of the ranks of active workers. The occupations and wages of the 12 who continue to work are as follows : Occupation Weekly Wage Seamstress $4.00 Messenger 4.00 Factory Hand 6.00 Fur Worker ■ 8.00 10.00 Laborer 10.00 Bookkeeper 10.00 Unknown 14.00 Clerk 1 5.00 P. O. Clerk 18.00 20 Occupation Weekly Wage Operator Unknown Factory Hand Of the 7 who are no longer working: Dentist's Ass't $5.00 Stenographer 10.00 Clerk 18.00 Stone Cutter Unknown Silversmith Factory Hand Dressmaker " One is at a loss whether to congratulate the relief families on the earning capacity of their women and children, which has not sufficed, however, to keep them from the shoals of de- pendency, or to congratulate the non-relief families on their suc- cess in escaping those same shoals ; albeit, in some instances the price of escape is being paid in part by the work of tuberculous young men and women. INCOME An attempt was made to compare the incomes of the two groups of families. In the relief group 67% of the families had an income of less than $15, of whom 16.4% were under $5. For 26% the income was from $5 to $10, 24% from $10 to $15, 17.8% from $15 to $20, 5.4% from $20 to $25; for 5.4% the income was not known. For the non-relief group the income stated for 38% was under $15, for 14.3% from $15 to $20, for 14% from $20 to $25. Eleven per cent, showed an income be- tween $25 and $30, 4.7% from $30 to $39, 2% over $50. For 14% no information was available. The detail of this com- parison classified according to the size of the family will be found in the table on page 69 of the Appendix. 21 It should be borne in mind that the incomes stated are only approximate. In the relief families they may be considered fairly accurate. In the non-relief families it was naturally much more difficult to obtain a definite statement of the families' resources, when no financial aid was asked or desired. In some instances the minimum income stated is manifestly inaccurate. No family could live on such an income. No further information was available, however. The size of family includes only those living and being sup- ported in the home — members of families in institutions are not included. This statement of income has been arrived at by adding the wages of all working members of a family living at home, to- gether with the amount received from lodgers and boarders. There were, however, very few of the families supplementing their income in this way, seven relief families and six non-relief families in all. There was no available information regarding the income of four relief families and eight non-relief families. For the relief families where the income is stated as nothing, the fam- ilies were receiving pensions from some relief agency, which is also true of several families where the stated income was ridiculously low. For the relief families it represents at most the limit of their wage-earning capacity rather than their average income, for this estimate takes no account of irregularity of em- ployment and the complicating personal factors of alcoholism, ill-health or inefficiency. LENGTH OF SOCIAL HISTORY VS. LENGTH OF TUBERCULOSIS HISTORY Assuming that the beginning of the social and economic ills of the relief families was coincident with their first application to the organized relief agencies, an interesting comparison can be drawn between the length of time covered by their tubercu- losis history as shown by the clinic record and the period covered by the history of their social maladjustment as shown by records 22 of the social agency.^ It is also significant to compare the non- relief families with the relief families as to the duration of their tuberculosis clinic history. Ten, or 133^%, of the relief families were unknown to the organized relief agencies at any time. Whatever material relief had been given to them had come either through the clinic or from some private or personal source, such as the church, rela- tives, foreign benevolent associations, etc. Of the remaining 86% no material relief had been given by organized relief agen- cies to 8j4% ; 155^% had received temporary relief, 45% inter- mittent relief, 31% continuous relief. Nearly one-half, 48%, had been known to the organized social agencies over 3 years, 12% had been known to these agencies from 8 to 21 years. The tuberculosis history of 61^ % of these families, however, covered a period of 3 years or less, another 25% had been known to the clinics from 3 to 4 years, while the remaining 13% had been known to the clinics from 5 to 8 years. Comparing the length of the tuberculosis history of the non- relief families we find that one-fourth have been known to the clinics under 6 months, 40% from 6 months to 2 years, 11% from 2 to 3 years. Thus, 76% had been known to the clinics three years or less as against 61% of the relief families who had been known to clinics for a similar period. A still more significant contrast is found in the number known to the clinics for a period of one year or less, 42% of the non-relief families as compared with 113/2% of the relief families. As the burden of their tuberculosis extends through the years to come, will these non-relief families join the ranks of semi- dependency or will they continue to be saved therefrom by their productive children? On the other hand, as the wage-earning children in the relief families grow to maturity, will they re- establish the economic independence of their families or are these families permanently and irredeemably subnormal mentally and physically ? 1 See Appendix, page 70. 23 SUMMARY Summarized briefly, the findings of the comparative study of relief and non-relief families were : 1. That the relief families show : a. Poorer housing conditions. b. A longer tuberculosis history. c. A greater incidence of infection. d. A larger proportion of wage-earners with tu- berculosis, both living and dead. e. A larger proportion of women working and tuberculous, f. A larger number of children under i6 with a proportionately greater number infected with tuberculosis. 2. The two groups, both relief and non-relief families, belong to the same wage-earning class with few exceptions. 3. The non-relief group shows : a. A much larger number of adult children in- fected with tuberculosis, the majority of whom are or have been working. b. A larger income, due chiefly to the work of these adult children. 4. Eighty-six per cent, of the relief families have been known to various relief agencies for periods ex- tending from 6 months to 21 years, of whom 81/2% had received no relief, i5>^% had received tem- porary relief, 45% intermittent rehef, 31% con- tinuous relief. AVe have thus accomplished, so far as was feasible, one ob- ject for which the present inquiry was undertaken, namely, "to contrast with dependent or semi-dependent families under clinic care other families also under clinic care who thus far have taken care of their own tuberculosis and have escaped the shoals of 24 dependency in order to see in what way they differ from the group of dependent famiHes." The intensive study of thirty-five reHef cases which follows has for its purpose the accomplishment of two other objects, stated previously, as reasons for undertaking the inquiry : First, "To show the background, the constitution, the quality of fibre, so to speak, of those families under clinic care who are regarded specifically as tuberculous families, who are partially, or entirely dependent, and for whom special tuberculosis funds are being called upon to furnish material relief." Second, "To point out deficiencies in both the medical and social treatment of dependent families with tuberculosis." The accomplishment of the fourth object of the inquiry, namely, "to suggest possibilities for the employment of special tuberculosis funds which will bring in the largest ultimate re- turns," will be made easier if predicated on the findings of the inquiry as a whole. 25 Part II Intensive Study of Thirty-Five Relief Families THIRTY-FIVE families receiving aid from the Woman's Auxiliary of one of the Associated Clinics furnished the basis for this study. These families had been selected by the Auxiliary from among the individuals under clinic care as most in need of relief to supplement their incomes. Families unknown to other social agencies, families under care of social agencies but not receiving adequate relief in the opinion of the visiting clinic nurse, and cases in which the Auxiliary was co- operating with some other agency in the matter of relief were included. Not alone those with the smallest income but those least efficient in meeting the problem of life and living are to be found in this group. On the other hand, casual patients, drift- ing in and out of the clinic, only to be lost sight of in the end, did not come within the scope of the Auxiliary's work. We have, then, a selected group, which includes, however, all the families under Auxiliary care at a given time. The 35 families studied include 31 normal families, i. e., man, woman and children; 2 fractional families, one a deserted woman and 4 children living with another man, and a woman living with her mother and sister; also 2 single women. There were 34 men, 37 women, 15 adult children and 131 children under 16 comprised in the entire group. Of these 35 families all but 3 are on the records of one or the other of the large organized relief societies. Nineteen of these families were known to social agencies before they came in contact with the clinic. Problems arising from ignorance of our language, our cus- toms and the standards necessary for city life bulk large in the task of social work with tuberculosis patients. The fact that these problems are not featured in this study means only that in the section of the city studied the families were predominately of 27 American, German and Irish descent. The detail of the nation- aHty of the 35 families studied is as follows : United States, 22 (i colored); Italian, 4; Irish, 6; English, i; Polish, i; and Croatian, i. Considering the occupation of the wage earners of these fami- lies, the predominance of drivers and laborers has no relation to their tuberculous condition, but rather reflects the fact that a large proportion of men living in this particular section of the city, the middle West Side, belong to' the lowest wage-earning group and are either teamsters or laborers. It is also worth noting that the people living in this district are, according to New York standards, a fairly static group, fami- lies remaining in this neighborhood from one generation to an- other. When they do move the new home lies within a few blocks of the old one. We may, therefore, expect to see the neighbor- hood influences reflected in the lives of these families. The char- acter of these neighborhood influences is vividly described in one of the "West Side Studies, Boyhood and Lawlessness" : "At first sight there are no striking features about the middle West Side. Hand to mouth existence reduces living to a universal sameness, which has little time or place for variety. In street after street are the same crowded, unsani- tary tenements, the same untended group of playing children, the same rough men gathered around stores and saloons on the avenue, the same sluggish women grouped on the steps of the tenements and the' cross streets. The visitor will find no rambling shacks, no conventional criminal's alleys — only square, dull, monotonous ugliness, much dirt and a great deal of apathy. The very lack of salient features is the su- preme character of this neighborhood. The most noticeable fact about it is that there is nothing to notice. It is ear- marked by negativeness. There is usually a lifelessness about the streets and buildings, even at their best, which is reflected in the attitude of the people who live in them. The whole scene is dull, drab, uninteresting, totally devoid of the color and picturesqueness which give so many poor districts a character and fascination of their own." 28 STUDY BASED ON MEDICAL AND SOCIAL RECORDS The present study was undertaken jointly by a nurse and a social worker. Unfortunately for the completeness of the study, the medical data were largely collected before the social worker began her work, and only in a few puzzling instances did it seem worth while to go over the ground a second time. Thus some data which might have been available in the medical records and which seemed important to a social worker were not included in the tabu- lation, usually because getting it would necessitate a great deal of extra labor and extend the scope of the study too far to be practicable. The information obtained was collected from many different sources with infinite pains, e. g., from clinic records and nurses (where verbal reports could be relied on to be fairly ac- curate), from the Hospital Admission Bureau, and from the main office of the Department of Health. Theoretically, the records of each patient are centralized in one place, but as the patient is sent from clinic to day camp, from day camp to hospital or sanatorium and back, perhaps to a clinic in a different section of the city, and finally is discharged, the con- necting link between the various records is often broken, and be- yond the clerical continuity there is none, each agency in turn assuming responsibility. Often the clue to a part of the medical history was found only by chance in the social record, and was then traced and verified by applying directly to the agency or institution mentioned. In several of the clinics the records of the several members of the family have been gathered together, so that if you know that one child is under clinic care and get his record, you can readily find out all about the other children as well as about the mother and father; but unfortunately this method has not yet been started in the clinic in which this study was made. The filing systems in the various clinics differ, some being by name, some by number, some by the day of the week the case attends the clinic. A great deal of information, probably the most valuable, is stored in the minds of physicians and nurses. 29 The record-keeping of social agencies, on the other hand, is fuller, more continuous, everything known of one family being collected in one envelope, so that the social records were easier to handle and more nearly a measure of the work actually done by the agency. However, social data which seemed important soon exceeded the provisions made for its tabulation on the printed schedule prepared for use in connection with this study. An- other form of tabulation was prepared which allowed for the following additional classifications : 1. Calibre of family — Family history — Attitude. 2. Home surroundings — Healthful stimuli — Freedom from mental strain. 3. Physical complications. 4. Emiployment. 5. Income vs. Budget. 6. Needs summarized. 7. Social treatment summarized. 8. Medical treatment. 9. Family's reaction under treatment. 10. Co-operation of clinic and social agencies — Occa- sional reports — ^Joint plan — Separate treatment. The roughness of these headings reflects the scrap-basket nature of this schedule ; but in one way or another a great many of the facts which were used in later tabulation could be noted here, and also unclassifiable facts and even impressions which would never reduce to statistics, but too telling to discard, could be lodged in this scheme. PHYSICAL DISABILITIES Any consideration of the physical handicaps under which these families were laboring would naturally give first place to the amount of tuberculosis from which they were suffering. Out of a total of 217 individuals, 54 (24.8%) were tuberculous, of whom 20 (37%) were dead.^ Of these, five tuberculous children registered in the social records but not in the clinic records, may have died before the family came to the attention of the clinic. 1 See Appendix, page 71. 30 It appears that the examination of other members of the family- has been fairly well carried out, as only 38 (17.5%) were not examined. As regards other physical disabilities not directly connected with or relating to the tuberculous infection of these people both the medical and social records afford only the most meagre infor- mation. Minor illnesses recorded in the social records, unless very frequent or noted as symptoms of more serious conditions, were not considered. These facts are brought out later in the sum- mary of physical and social disabilities (page 37, part II). An attempt was made to tabulate the general health condi- tions under the headings Good, Poor, Not Stated, but it seemed impracticable because of the slight evidence available. SOCIAL DISABILITIES The economic status of these families and its relation to their tuberculous condition is evidenced by the information obtained from the social histories regarding their condition of dependency. Thus we find that of the 35 families : Three were not known to organized charity ; Nineteen were known to organized charity previous to clinic care; Five were known to organized charity subsequent to cHnic care; Eight were known to organized charity and to the clinic at the same time. That is, 19 families had a previous history of social de- pendence, although not necessarily receiving relief. In eight families social dependence developed at the time of physical breakdown. Five families were able to meet the problem for a time with the help of the clinic, but later needed social care. Three families have so far been helped solely by the clinic. Doubt- less a much larger proportion, of whom we have no record be- cause they do not come within the scope of this study, carry the 31 burden of sickness with no help from either organized charity or the chnic. These figures are suggestive in showing in how few famihes the cHnics try to carry the relief problem alone. Of three fam- ilies in this group, one was a normal family, with both parents and three children. There are indications that the problem was predominantly a health problem. The man, a watchman, was in the habit of making $17 per week. There are no mental or moral disabilities recorded, and relatives are helping the family. The danger signals indicated are that it is the man, the wage earner, who is ill and incapacitated for work. His condition is progressive and he is in the hospital. The relatives are "unable to help much." The family is unwilling to attend clinic. So far it is apparently a family meeting its own problem, although not entirely satisfactorily. The other two included in this group are single women, one of whom is taken care of by the community through a sana- torium. The other lives with a sister and their old mother, appar- ently managing with very little help. These would seem to be less urgent cases from a social point of view. That eight families did not come to social agencies until the time of illness and five families not until some time after, sug- gests that in these families a fair degree of normality may be expected, and the chief element, and therefore the chief respon- sibility, is probably the health problem. Other things being equal, a reconstruction of their health will set them on their feet, pro- viding the previous state of normality has not been impaired during the strain of illness. The largest number, 19 families, or 55%, belong to the group which has been socially dependent prior to having tuber- culosis or prior to the discovery of it. In these families the social factors must be closely considered in any program of care for the existing tuberculous condition. In as far as these figures are suggestive, they show that the clinics' relief program is of inconsiderable size, and used to sup- plement rather than take the place of other forms of organized charity. 32 Reclassifying these 35 families in an attempt to relate their economic dependenc}^ to their tuberculous condition, we find that : (a) Prior to tuberculous infection. Twenty-one families were apparently self-sup- porting ; Eight families were occasionally dependent ; Six families were chronic dependents. (b) After tuberculous infection. One family still apparently self-supporting (re- ceived sanatorium outfit only). Twenty-seven families received occasional relief ; Seven families were chronic dependents (i. e., re- ceived som.e regular allowance, which was main support of family). MEN'S WORK The records of ^2 wage earners were studied and the infor- mation summarized as follows : ^ All belonged to a low-wage group ; that is, wages varied from $6 to $21 per week. One was a telegraph operator working regularly and earning good wages, but the amount was not stated. Four whose wages were too irregular to tabulate were alcoholic, inefficient or physically disabled (other than by tuberculosis) to such an extent that they were practically unemployable. The lowest tabulated wage, $6, was the estimated earnings of a peddler. Twenty-four out of 32 earned not over $15 weekly; 18 out of 32 worked irregularly. Physical disability other than tuberculosis, alcoholism, ineffi- ciency and trade irregularity are factors in these cases. Any at- tempt to secure an adequate income which will protect the family from the living conditions which were favorable to the outbreak of tuberculosis must deal with these factors. Considering the effect of tuberculosis on the economic effi- ciency of these 32 wage earners, we find that 1 1 were dead, as a result of tuberculosis, 10 were living and tuberculous. Of these 1 See Appendix, pages 72 and y2>- 33 lo, two are working at the same occupation; one a laborer at $13 a week, one a flagman at $10 a week. Three others showed a reduced earning capacity since their tuberculous infection. One, who formerly earned $15 as a laborer, now earns $10 a week as a porter. Another, who earned $13 as a teamster, now earns $12 as a laborer. The third, who formerly earned $15 as a painter, is now working as a janitor for his rent plus $15 monthly. Five of the 10 are not working. One factor in this reduced earning capacity may lie in the casual character of the occupation, but the physical disability resulting from their tuberculous infection has undoubtedly played a large part in reducing the wage-earning capacity of this group. The fact that these men are allowed to drift into any occupation on their return from an institution frequently accounts for their subsequent relapse and death. It would seem the better part of economy to continue such cases under observation and to sup- plement their income, rather than to sever relations because the "man is back at work and able to support his family." WOMEN'S WORK An attempt was made to summarize the available informa- tion regarding the work and wages of the wives of these 32 wage earners as follows : ^ Information available as to their previous occupation was too vague to be used as a basis for any conclusion, except as to the number of women who were previously employed in gainful occupations. In this low wage group many women had been working even previous to the death or illness of the husband. In six families only the woman was not helping with the financial burden when tuberculosis developed. Subsequently i woman died. Six wives still do only house- work. The occupation of 3 others was not known. Twenty- two of these women have taken up the burden of support. A large number of women did only home work after the out- break of disease. The women tend to go into unskilled work that takes part time, largely cleaning and laundry work, because 1 See Appendix, pages 74 and 75. 34 they have children to care for. In 14 cases part time work only was being done. When the wage earner is afflicted, women are driven into industry, either to supplement the reduced earnings of the hus- band or to undertake the entire support of the family. Wages and hours are entirely irregular, but in no instance are the earn- ings sufficient to maintain a decent standard of living unless supplemented by children's earnings and relief. In II families where the man is dead, 2 families have chil- dren over working age ; otherwise the woman has to carry the full burden of support unless supplemented by some form of relief. The weekly wage earning capacity of these 11 women is as follows : One woman earns $9.00 Three women earn 6.00 One woman earns 5.00 One woman earns 3.50 One woman earns 2.50 Two not known Two dead In the 10 families where the man is living but tuberculous, 2 women are not working; in one instance because the man still holds his job, in the other because grown children are working. Four women are the only wage earners for their families. Their occupation and earning capacity per week are as follows: One factory worker $5.00 One janitress and cleaning, rent plus 4.50 (Woman not only supporting children but sick husband as well.) One laundress 4.50 One factory worker 4.25 In the group in which the man is living and either not tuberculous or not examined, therefore supposedly working and 35 supporting family — 4 women are at home and 4 are supplement- ing the family income. CHILDREN'S WORK Out of 32 families only 8 famiHes have children of working age, 14 years or over, 13 of whom are or have been working, 4 among families where wage earner is not affected by disease. The kind of work done by these 13 working children and their weekly wage was as follows : One ofhce boy $6.00 One candy packer 6.00 One elevator boy 5-00 One errand boy 4.50 One factory hand : 4.50 One electrician's helper 4.00 One laundry worker 4.00 One farm hand (tuberculous boy supporting only himself) One, employment unknown Three, odd jobs One not working at present In addition, in i family 2 children under age were working at selling newspapers. They had repeatedly been caught beg- ging. Including these 2 children, the employment of 8 children appeared entirely unsatisfactory. Of the remaining 7 not enough is known to judge; but only i (an electrician's helper) was learning a skilled trade. One candy packer and i office boy were brother and sister whose parents had died of tuberculosis. The record shows that neither can hold any job very long, the girl being indifferent and apathetic and the boy rather wild. HOUSING CONDITIONS Little definite information is available regarding the housing conditions of these famiUes. It was known that 8 of the homes 36 of the 35 families were dirty and ill-kept. In 6 families the ratio of individuals to a room was over 1.5. Six families had a record of frequent moving. Thus : One family moved five times in seven years. One family moved fifteen times in ten years, seven months. One family moved seven times in three years. One family moved seven times in four years. One family moved fourteen times in nine years. One family moved ten times in three years. CONCLUSIONS AS TO PHYSICAL AND SOCIAL STATUS OF FAMILIES STUDIED Of the 217 individuals included in the 35 families studied, 20 (9.2%) were dead as a result of tuberculosis, 34 (15.6%) were living and tuberculous. In addition to this physical handi- cap, the data obtainable show that complicating personal and individual factors are keeping these families below standard. The following tabulation is an attempt to summarize both the physical and social disabilities from which these individuals were suffering : 34 Men: Physically below par (other than tuberculosis) .... 20 Industrially below par 18 Cruel and abusive 4 Indifferent 7 Alcoholic 9 Deserter 2 37 Women: Physically below par (other than tuberculosis — may include childbirth) 22 Inefficient (in the home) 8 Indifferent 5 Alcoholic 4 Immoral 4 Mentally defective i 37 146 Children : Physically below par (other than tuberculosis) 19 School irregular , 2 Below grade i Mentally defective i Unruly 4 Child labor 2 Begging 2 Inadequate home care ' 2 This is all that can be said as the information is so meagre. Absence of comment may mean that conditions were good or it may mean that the social worker failed to recognize the presence of bad conditions. The outstanding defects seem almost like mountain peaks that succeed in obtruding themselves above the surface of the prevailing low standard. The industrial difficul- ties are most quickly noted. The housekeeping disabilities seem next in importance. Further investigation would, without doubt, show a maze of disabilities all reacting on each other. The records as a whole are amazing in their haphazard appreciation of these people's difficulties. Of the 35 families studied many have young children. In 8 families there are children over school age. The children's needs seem to have been disregarded altogether unless we may assume that, except in the few cases noted, these children were attending school regularly, were up to grade and were well cared for at home. Of the 15 children who are working, 2 are under age, 8 are working under conditions entirely unsatisfactory. Of the remaining 7 not enough is known to judge as to their work condition, but i only, an electrician's helper, is learning a skilled trade. The general physical level is low, but how many are actually in robust health and how many have physical disabilities not related to their tuberculous condition is not known. It is noteworthy that relatives figured so little in the lives of these families, at least, that is the impression one gets from the social records. Financially we would expect them to do very little, as the probabilities are that they themselves are near the 38 margin of dependence. In 8 cases relatives gave some material assistance. It was very little. Other natural resources of helpfulness were not very suc- cessfully tapped. The church gave financial help in five in- stances. In one instance this wa.s estimated as at least $ioo. Employers in no case gave relief and, again judging from the records, it does not appear that they were ever approached on this subject. Adequate pensions were given in three cases with educational supervision, otherwise relief was meagre, intermit- tent and inadequate during the period of the wage earner's ill- ness, thus letting the burden fall too heavily on the wife. In 17 instances the woman subsequently developed tuberculosis or was otherwise physically disabled. As the institutional care was short and intermittent, the greater strain on the family came during illness which often lasted for several years. All of the families belong to the low wage earning group and therefore had little or no chance to save for time of sickness. The industries of the men were largely unskilled. In 18 cases the work history was irregular. In 5 cases this was due to the irregularity of trade itself, in the other 13 cases to com- plicating factors of physical incapacity, alcoholism, inefficiency and indifference. Previous to the history of tuberculosis infection a large pro- portion of women have done housework only, subsequently 6 only are recorded as doing housework, from which it appears that not only the death of the wage earner but illness throws the burden of support on the woman and drives her into industry. Hours and wages for women's work are most irregular. Four- teen of the 20 women working were doing part-time work. Every tendency is to go into unskilled work, largely cleaning and laundry work. The most evident thing is that very little was known of the background of these families and tentatively one would conclude that relatives play a very small part in their lives ; that the church connection has been largely lost as far as any vital con- nection is concerned; that with employers the relationship is 39 temporary, shifting and in no case does it mean more than a work relationship so far as the social records can show. The neighborhood background can only be concluded by one's knowl- edge of the West Side. The records never, except by the most meagre comments, take the neighborhood life into consideration. To sum up, as far as the testimony of the records go, the majority of the families studied were deficient in the elements essential to social welfare in health, industrial efficiency, recre- ation, education and spiritual vigor. In so far as this same tes- timony goes, the tuberculous condition seemed deeply imbedded in these social disabilities and could hardly have been treated separately. The records fail to give a clear-cut idea of the strong and weak points in each family or any measure of the permanent progress made in treating these families. Judging from the repeated re-openings of the cases, the harmful forces are too deep-rooted and persistent to be removed by the social treatment given. METHODS OF TREATMENT We come now to a consideration of a third object for which the present study was undertaken, namely, to point out the "de- ficiencies in both the medical and social treatment of dependent families with tuberculosis." That the problem of the tuberculous patient is not met by treating him alone, but must take in his whole family in its oper- ation, seems an established principle in the care of tuberculosis. That inadequate incomes, accompanied by underfeeding, bad housing and worry, are obstacles in the way of the physician which must be considered in any program of care, is also show- ing itself in the prevalent practice of clinics in supplementing the incomes of their neediest patients, either through their own organizations or by referring them to some "relief society." But whether medical care plus relief can satisfactorily meet the problem of these families, or whether effective care must in- clude "social treatment," has not yet been clearly proven. Tentatively we may define social treatment as "action under- 40 taken to secure for a family the ability to insure its own general well-being," or, more specifically, the endeavor to secure for a family resources in health, employment, education, recreation and spiritual vigor. Are there families under clinic care who are deficient in this ability to "secure their own general well-being," and if so, can their tuberculous condition be treated separately? Or is their tuberculosis simply one manifestation, one symptom of general below-par-ness which may break out in any of a score of differ- ent ways, and which will always be liable to break out again until the deep-rooted causes can be diagnosed and treated? If we find conditions generally accepted as lowering resist- ance to tuberculous infection operative in a majority of tubercu- lous families, upon further analysis do we not find the cause of these conditions imbedded in the social forces of the family and the community? Can we not demonstrate that, as long as we allow these primary causes to go untreated, the same symp- toms are apt to manifest themselves and that any treatment of one symptom only is temporary and uneconomic? If this is true, how can the treatment of the social needs of the tuberculous best be correlated with the work of the physician and nurse? Is there as yet a technique of social treatment to deal with these "primary causes?" Is this technique effective in all cases? If not, where does it fail and why? Again, what can be expected under present conditions from the clinics? Certainly social workers should know their point of view, know the handicaps under which they work, where there are gaps in their routine, where an extra effort in the same direction will help their work, and how much can rightfully be expected from them for the families in which social workers are equally interested. If these points can be fixed fairly in mind and the method of social work is flexible enough to adapt itself to these conditions, social workers should be more ready to work harmoniously at the joint medical and social problems of tuberculosis or to face squarely certain issues which have seemed to be irreconcilable. 41 MEDICAL TREATMENT Before proceeding to a detailed consideration of the methods of treatment in vogue in the tuberculosis clinics and the relation of these methods to the scheme of social treatment as carried out by the social agencies which are also in touch with these families, it may be well to see what effect institutional care and treatment have had upon the tuberculous condition of these fam- ilies. Thirty-five cases, in each instance the first member of the family who had applied to the clinic for care, were studied for the history of their institutional care, which is shown in the following tabulation: Length of Care No. of Cases Under one month 6 One to three months 7 Three to six months 4 Six months to one year 6 Over one year 3 No institutional care 9 Total 35 In 8 of these cases the care recorded was intermittent, that is, included two or more admissions to institutions. Of these 35 cases, 13 died, 6 are progressive, 11 improved, 5 ap- parently cured. Day camp care was noted in 3 cases, but in- formation was lacking as to the length of their attendance or its regularity. Fourteen subsequent cases in these families also received institutional care as follows: Length of Care No. of Cases Under one month i One to three months 2 Three to six months 3 Six months to one year i No institutional care 7 Total 14 42 Thus in 35 families, out of a total of 49 cases of tuberculosis with whom the clinic had been working, 16 (32.6%) received no institutional care. It was not possible to arrive at any definite conclusion as to the results obtained by the institutional care received for the following reasons : 1. The number of cases in each group was so small. 2. Definite information as to the condition of the patient on admission is lacking. 3. Insufficient data as to whether care had been inter- mitten or consecutive, i. e., whether the patient's stay in an institution had been for a consecutive number of weeks or months, or whether he had been admitted and discharged several times. While this intermittent care may be due to lack of enforce- ment of the powers of forcible detention, it is probably true that in many instances a continuous stay in the institution could be secured voluntarily : 1. If the patient were convinced that his family was being properly cared for. 2. If institutional life were made more attractive by eliminating just grounds for the repeated complaints regarding overcrowdng, failure to classify patients according to their social char- acteristics, unattractive dietaries, etc. Likewise we are unable to arrive at any conclusion as to the effect of institutional care of the first case on the subsequent infection of other members of the family for the following rea- sons: 1. The length of infection previous to admission to the clinic could not be shown. 2. It was not possible to know definitely whether the case first registered with the clinic was the first infection in the family. 43 From the information available for the 33 cases who did enter institutions, it seems that institutional care played only a small part in the program of care worked out for these families. In man}^ cases it was too short to have any effect except pos- sibly in giving the patients some training in hygienic methods of living. The fact that institutional care plays such a small part in the history of these tuberculous people should be realized and a more adequate technique of home care should be developed. As regards clinic care, the regular routine provides for periodic re-examination, for home visits by the clinic nurses and for day camp care in a small number of cases. There is no record of the adequacy of any of these measures or of the methods employed to bring into line ignorant or indifferent patients. In other words, the ground is covered extensively by the clinics, but there appears to be need for far more intensive individual case work if results are to be obtained in the home care of these cases. CO-OPERATION BETWEEN MEDICAL AND SOCIAL AGENCIES AS AFFECTED BY WORK METHODS OF EACH Before proceeding to a detailed criticism of the methods of work of the two groups of agencies it should be noted that these criticisms have been gleaned from personal interviews with indi- vidual workers, from attendance at conferences and from the reading of reports, rather than from any analysis of case records, where disagreements are seldom recorded, although the basis for the criticism of relief agency methods are illustrated in the records. The criticisms made by the social agencies of the clinics' methods of work can be summarized briefly as follows : I. That the tuberculosis specialist sees only the medical problem, ignoring the effect of his plan of treat- ment on other phases of the patient's develop- ment ; that the giving of relief is on a sentimen- 44 tal basis not determined by any broad social policy; that relief is given without regard as to whether the right use of it is made, e. g., if the patient actually consumes the special diet pro- vided ; that the tuberculosis nurse's policy of "handouts" spoils the later relationship of the family and the visitor for the social agency ; that the clinic often gives relief w^hen the giving of it makes the continuation of a socially dangerous situation possible. 2. That there is inexcusable delay in getting patients to hospitals and sanatoria. 3. That forcible removal is not often enough enforced. 4. That home supervision is inadequate. 5. That disputed diagnoses often keep the patient on ten- terhooks and finally discourage his attendance at the clinic. 6. That the physical examination is too short and super- ficial to be reliable, especially for the detection of other dangerous symptoms. 7. That the clinic does not make sufficient effort to fol- low up patients who do not attend regularly, or lapse altogether, or to secure examination of the entire family. 8. That having diagnosed the need of other medical treatment, e. g., removal of tonsils and adenoids, there is no assurance that this is carried out. 9. That clinic records are not full enough, accurate enough, up-to-date enough, available enough. The first of these criticisms of the clinics' work relates to action on the part of the clinic which involves a broader question than the medical aspect of the cases under consideration. Relief as a therapeutic measure may be within the scope of medicine, but relief as it contributes to the family's activity as a self- dependent, economic and social entity may need other than medi- cal consideration. Policies of relief-giving as well as those in- 45 volving the maintenance or breaking up of a family group must be settled by fundamental considerations of the greatest total good to the family and community, which both nurse and social worker are seeking. We have come to realize that this cannot be done without some technical knowledge of social problems^ which very few nurses have as yet acquired. If the problem is to be solved by the division of the field between the social worker and the nurse, then the nurse must realize the validity of the social worker's principles in regard to the social problem of a tuber- culous family. More and more, however, nurses are adding the training in these principles to their equipment, and they will be increasingly ready to handle the whole problem, weighing the medical and social needs of a patient so as to reach the best ad- justment, or better still, the harmonious solution of his problem. In the meantime, social worker and nurse should get together for a reasonable conference on each case as it comes up, reminding themselves often of their common aim in securing the welfare of the individual, and defining what this welfare consists of. It is worth while remembering that there may also be an advantage in the intensity with which each specialized agency regards the special need it is meeting. When social workers wish to suggest modification in the medical treatment given to a man because they believe that not merely his sickness but also his status as father, wage earner and citizen needs consideration, they have all the disadvantages of the youngest member of the fam.ily of professions — in measuring up their tentative, pragmatic and still largely unformed technique against the older one of medicine. If they would only remem- ber to keep it tentative and pragmatic ! Do we know yet, for instance, on scientific — not dogmatic — grounds what is a "socially dangerous situation"? Every step which can be taken toward increasing the firmness and soundness of social treatment will win social workers a better hearing with the medical specialists. The second point, about inexcusable delay, also needs further analysis. Is it not sometimes due to the clinic being more con- scious than social workers of the inadequate facilities, the other 46 more urgent cases pressing for attention, of the unattractiveness of institutions which makes them so unendurable to the patients who are sent? We need to differentiate pretty fairly between lack of community resources and the apparent indifference of the cHnic in order to put pressure in the right place. Forcible re- moval is another point at which the health authorities have had to be wary — to go no further than public opinion would sustain them in the exercise of so drastic a measure. The objections about inadequate home supervision, hasty medical examinations and failure in follow-up work have a fa- miliar ring to social workers. They raise the question as to whether an attempt to cover fully the field in some shape is as valuable as to establish standards in a limited field which can be used as a basis of education and extension. The better correlation of the work of the tuberculosis clinics with other medical clinics is especially important, in order to insure specialized treatment when morbid conditions other than tuber- culosis are present. It is equally necessary, in order to secure treatment for physical defects contributory to tuberculous infec- tion, when the special tuberculosis clinic is not equipped to give such treatment. In immigrant families, in indifferent but socially dangerous cases, with children, we cannot afford to leave this correlation to the initiative of the patient. The question of disputed diagnoses seems to lie so wholly in the medical field that we cannot do more than mention it and to recall to the physicians as tactfully as may be the hardship it entails on a family. When all is said, an unsound snap judgment may bring greater and more unnecessary hardship. As to the clinic records, they have been in the past scrappy, inaccurate, often out of date and badly organized. Nurses know it, and sadly confess that the most valuable information is in the heads of the physicians. While the clinic record shows the date of the patient's visit to clinic, there is no way of knowing whether this attendance met the mxcdical requirement of individual cases, as the recommendation of the physician in this matter is not re- corded. While other physical defects are noted, there is seldom 47 information available as to whether treatment for these defects has been secured. Seldom do they note the reason for a patient's discharge from an institution or reason for his not going when institutional treatment seems to be indicated. Occasionally the medical record indicates if the family is hard to deal with, other- wise no comment is made as to the success of home supervision. No distinction is noted on the medical record between lodgers and boarders who share food. In recent years there has undoubt- edly been a considerable improvement in both the medical and social records kept at tuberculosis clinics. Judging from the cases studied, the clinics can be trusted to cover the field extensively — to get in all the members of the patient's family, if moral suasion will bring them; to do good preventive work with children ; to visit the home periodically, but not enough ; to secure attendance at the clinic, which does not necessitate very persistent follow-up work; finally, to supply relief, indiscriminately or not, as the case may be, until the relief agencies do the job so well that they must recognize their motives and methods as the best available. The indictments of the relief agencies by the clinics may be summarized as follows : 1. That adequate relief in nourishment, good housing, freedom from worry are indispensable therapeu- tic measures, and that the relief agencies give meagrely, defer the giving too long, refuse in cases where it should be given, and give irregu- larly; that the tuberculosis nurse, owing to her medical relationship, has the family's confidence more completely, and is therefore a better judge as to when and how much relief is needed. 2. That organized charity, having learned the one fact that institutional care is desirable for tuberculous people, tries to force this method of treatment through in every case ; and where institutional care is not possible it is apt to drop further action, whereas in some cases home care is not a great 48 menace, and the existing menace is increased by withholding adequate nourishment — that it is nec- essary to consider individual prejudices and to temporize often. 3. That organized charity investigation antagonizes the patient and leads to nothing in the way of con- structive treatment. 4. That organized charity has no hold on the family but relief. 5. That organized charity does not succeed in rehabili- tating the majority of its families, and therefore its efforts are more or less futile. Considering in detail the criticisms made by the clinic nurses of the work of the social agencies for the families in whom they are interested, social workers can afiford to be frankly severe with themselves. It is true that in all but a few of the cases studied (three pension cases notably) relief was meagre, irregular and long in coming; that an entirely inadequate conception of the necessary standards of nourishment, sleeping arrangements, rest and out- door recreation was evident. The criticism that at present they seem unfit to judge what is needed in such matters has some foundation. The length of time many of these families have been known to organized charity without ever having been affected in the slightest degree by their relationship is startling. That the rela- tionship between organized charity workers and the family hangs on the question of relief, and that only, seems also true almost invariably, and because there is no other lever, withdrawing relief is used frequently by the visitor to get the family to take a de- sired action ; that this fact must bias the sort of information given the visitor, and that therefore the nurse is apt to have a franker relationship is obvious. If there were no question of withdraw- ing relief except in the most extreme instances, and if there had been numerous other ties established between visitor and family, 49 these could be used to get a family to follow advice. The effort should be to bring about a change in the family's point of view, rather than to make them go through certain actions from fear of losing relief. Organized charity workers need, above all, to develop the art of second best plans — when institutions are overcrowded, urging further admissions only aggravates the conditions in the institutions, which make patients hate to go and unwilling to stay. At present it is necessary to select the most urgent, or most helpable cases, in the meantime never ceasing to agitate for more adequate accommodations, but meanwhile developing a technique of home care for cases that can't get in, for cases that are wait- ing, for cases that won't go, for cases that can very well profit by home care. There are instances in which a father must be allowed to die at home, and the best we can do to safeguard the children is to feed them well, keep them out of doors, even if it takes a daily visit, and so show our vital interest that the family will believe in the good faith of our advice. These human reasons for the failure of the best plan are much more quickly understood and appreciated apparently by the nurses than by the social workers. Again, social workers are con- stantly getting irritated at and condemning a patient's state of mind, while a nurse realizes that frequently the mentality of a tuberculous patient is affected by the toxic action of his disease. The criticism about investigation applies to any sort of case work. If we could only make our services as real to the mind of the public as our investigation, it might be possible to connect the two in their minds, although in the thirty-five cases studied the connection is not clear in the records and the criticism seems justified. The waiting game, before a definite plan is decided upon, is one of the social worker's habits which calls forth the condemna- tion of the nurse ; but in the cases studied up to the record of the last two or three years, the whole game was a waiting game, and there were no plans. The recent records do show improvement on this head. 50 There are additional criticisms Avhich are suggested by a study of these cases. We are not sufficiently aware of the strain on the other mem- bers of the family. Our energies seem to flag when the family is examined, more or less adequately relieved, and the patient has applied for admission to an institution. In a great propor- tion of this group of cases the patient was the man. It should be carefully considered how much work the wife could wisely do while she is caring for her husband and even after he has gone. According to the social records, natural resources of help are lacking in many cases, and are very meagre where they do exist in these city families. The records show so little study of background that it is almost impossible to say finally that these families have not the normal connections which the case worker largely depends on to make her work successful. But if further study proves this true, does it not indicate that we must use artificial levers more largely to jack these families up? We must keep in mind that under present conditions no force can be exercised to keep the average patient in an institution, and repeatedly our half-hearted way of caring for his family has brought a man home to attempt to take up the burden himself, thus jeopardizing his cure. It is sure failure to our treatment to close the case when the cured or arrested patient returns. Only special interest and advice^ constant supervision and readiness to help share the burden of support can insure a man's not relapsing. This policy was not apparent in any case, and relapses and subse- quent deaths occurred. SUMMARY When we have made all these adjustments there still remain the knotty problems of : 1. The man who is able but refuses to support his family. 2. The family which it is eugenically criminal to keep together. 3. The hopeless family who are so unteachable that effort and money seem misspent because they do not touch the situation. 51 4- The non-sufficient family which will have to be helped along- indefinitely to maintain a decent standard, without any prospect of its becoming self- sufficient. In the records of cases studied, the social treatment given seems to have been slight, casual and limited almost solely to times of financial stress — a sort of "lend a hand" policy which may tide a normal family over an emergency. It shows little evidence of the adequate handling of a case having the elements of normality, but demanding intensive work in physical rebuild- ing, re-education of habit and careful readjustment of environ- ment. Unavoidably it has failed with the group where the very mainspring of life seems never to have existed. Even to define the social problem of tuberculosis treatment to this extent, to dififerentiate treatment accordingly, would be a step forward. Are we not ready to distinguish between cases we can help and those which we have no power to help, and there- fore do not dare to handle? Furthermore, are social workers prepared to say that these latter cases should become the respon- sibility of the community, which should have larger powers of legal compulsion and take over the care of these cases for its own protection? Again, social workers have assumed exclusive skill in the problem of handling relief, and therefore all the odium and the hazards of relief-giving are heaped upon them. They need to define their field of work to themselves and to limit their intake accordingly. They need to dare to say when they do not know or when they think a problem hopeless. They need records that will be some index to the normality and helpability for the fam- ily. If this be done they will have given validity to their conten- tions in cases involving co-operation with other agencies. As the best means of securing a workable basis for such co-operation might be suggested : I. A broader study of the problem of family welfare involved in a particular case, and in the light of additional knowledge to see if the ultimate prob- lem is not the same for both agencies. 52 2. A better definition of the scope of each agency's work. 3. A better understanding of the p^irpose of the detailed processes or methods of work of each agency. 4. An appreciation of the Hmitations imposed upon each agency by lack of community resources, legal restrictions, limited finances. 5. A better organized machinery for securing more fre- quent conferences between the two groups of agencies on problems in which both are inter- ested. 6. The exertion of pressure on each organization to cause it to square its methods with its professed ideals. In snap judgments we are apt to attribute most of the mis- takes we think we see to a failure in this last named particular, whereas they may be due to either more excusable or improvable causes. If this is true, we may be ready to face more easily those issues in which our differences seem to be irreconcilable. Perhaps we may be able to face facts still harder to admit, namely, that there are people whom, with our present equip- ment of skill and technical knowledge, we are not able to help, people who so far as we are concerned are unimprovable. 53 Conclusions and Recommendations Returning to a consideration of the objects for which the present study was undertaken as stated in Part I of this report, there still remains to be considered the fourth object, namely, "to suggest possibilities for the employment of special tubercu- losis funds which will bring in the largest ultimate returns." Let us recapitulate the findings of the comparative study of the relief and non-relief families, which were as follows : 1. That the relief families show: a. Poorer housing conditions. b. A longer tuberculous history. c. A greater incidence of infection. d. A larger proportion of wage earners with tubercu- losis, both living and dead. e. A larger proportion of women working and tuberculous. f. A larger number of children under i6 with a pro- portionately greater number infected with tuberculosis. 2. The two groups, both relief and non-relief families, be- long to the same wage earning class with few excep- tions. 3. The non-relief group shows : a. A much larger number of adult children infected with tuberculosis, the majority of whom are or have been working. b. A larger income due chiefly to the work of these adult children. 4. Eighty-six per cent, of the relief families have been known to various relief agencies for periods extending from 6 months to 21 years, of whom 8^% had re- ceived no relief, 15^% had received temporary relief, 45% intermittent relief, 31% continuous reHef. The intensive study of 35 relief families, which is given in Part II of the report, strongly indicates that our present tech- 54 nique for handling a large proportion of these families is not adequate to secure results. In other words, that we are unable to rehabilitate families in which "the very mainspring of life seems never to have existed." In view of the limited facilities at our disposal we are urged "to define our field of work, differ- entiate our treatment, and to limit our intake accordingly." On the basis of these findings we therefore offer the fol- lowing recommendations for the employment of special tubercu- losis funds, particularly with reference to those funds raised by organizations auxiliary to tuberculosis clinics : First: To furnish the necessary equipment for taking the "cure," such as sanatorium outfits ; provisions for sleep- ing arrangements which may be necessary to continue the "cure" at home. Second : To provide loans : a. To discharged sanatorium cases, either to relieve the economic pressure during the necessary period of convalescence or to permit the es- tablishment of these sanatorium graduates in business. b. To supplement family incomes in order to enable the adult tuberculous children who are con- tributing thereto, to cease work and take the "cure." Third : To provide increased facilities for preventive work with children, such as : a. Country homes for continuing care of physically sub-normal children exposed to infection. b. Summer vacation homes for children of tubercu- lous families. c. Temporary homes for children under four whose mothers may need institutional care. d. Educational classes, i. e., corrective exercise classes, cooking classes. Finally, if we have the courage, whether we be social workers or medical workers, let us admit frankly our failures, 55 recognizing that some were unavoidable considering the material upon which we have been working and the limitations of our present technique, but that others have been due to our own imperfections, our lack of tolerance, of experience, of skill, of knowledge. And if our admitted failures are still with us in the flesh, a broken family that we have not mended, a temporary dependent whom through mistaken kindness we have confirmed in his dependency, let us not trj^ to shift the burden elsewhere, but rather do our best to meet the responsibility created by our own mismanagement in the past. 56 APPENDIX NATIONALITY OF FAMILIES STUDIED Nationality Relief Families Non-Relief Families United States 30 25 12 2 8 Italy 5 Ireland 4 Austrian 3 German 2 Hungarian 6 English 1 Roumanian 2 Polish Bohemian 5 French 1 Russian 27 Total 74 64 59 HOUSING— APARTMENTS CLASSIFIED ACCORDING TO NUMBER OF ROOMS PER APARTMENT No. OF Rooms in Apartment Relief Families Non-Relief Families No. Per Cent. No. Per Cent. 2 12 28 24 5 1 4 16 37.5 33 7 1.4 '5 2 15 27 11 6 2 1 3 3 24 4 43 5 17 6 9H 3 7 No infnmna.tinn Total 74 64 60 l-H O s fc. o o o 6« 00 Cs r— 1 T- ►J y, < o H a} O « PU lO 1-1 ^ CO m S O O « Q 5? o a> 6 :z; GO (N CO CO K » < ^ d O 00 CO <© s fa O A< in "a 1 •F- "a d o 61 ^ II 1 1 0? 1-1 t)< r-i C* CO"* 000 ;^s T-l '^ ^ ,^ (N (MM li. T3 S 1 1— 1 iH 1-1 fO>o Sl^ e© + •* (N as + CO 1—1 -S IN m + T— 1 1-1 1—1 CO"! N e# + T-( ^s IN e© + 1— 1 1—1 I— 1 r-l iHrH CO 10 fN >3 ^ + T-H (N CO "5 ai (MM a» + 10 rH 10 (N 1—1 ^ CO 10 + CO Cq (N 10 kOl> •^ilj ,-H <« cc T- lO (M (M 1—1 ■* rUto e© + r- ^ CO r-( iOt> -2^ m + '^ H (M (Nt- ^ •a 00 f 5 CO CO CO ® CO"^ t) |i( . « r^ t- GO TlHfN TfH^ l>- ro lO t^ 1—1 00 tH .-h COO 00 (MO °l H-l C^ )C0 c^M< ,-iOi (MM (M-* I— 1 "-I i-l CJ * '"' COO z-^ j^ Ul tt-i ,:^ ^ =4-1 C J CD 03 03 3 «« ^, e<-i <--l 3 c 03 03 w g "7 ^, p 5 ^> « 03 P4 i1 rt OJ Pm ;^ 1 p: ^ P? £^ p: H ^ ? f^ S rt ^ rt PI P4 *^ c P^ § ^ ^ ^ ^ ^ ^ ^ 03 IB a; CO ^^s -a CO a TfH a 10 a g ^1 03 o3 02 <; 2 rH ;-< 1 ^ Eh H 62 HOUSING— GENERAL CLEANLINESS Relief Families Non-Relief Families No. Ppr Cent. No. Per Cent. Good 29 22 15 4 41 31 21 35 21 6 56 Fair 33 Bad Not Stated 9>^ Total 70 62 63 CO w. O O H Em O H O Q H o (N § a 5 » CO 13 s n O 1 2 CO® 1 «5 2^ in IN s 1 o O 1 CO e ^ o "* 03 J 05 §^ HO 00^ 28 1^ i^ IS t4~ .i p: 3 64 < H O < O in H < < < 03 H K W W Q C<) CO a w Q g -1 l? 'a !>. > CO CO ^ 1— I t-^ 0:i ^ GO 10 10 O S ^ Si Pi PJH c 65 < O O I— I Eh ^ W P4 ^ ^ ^ ■* K s (M H ^ ^•" « fH H P c< t^ ad cc t- o H ^^ •A ^ » n CO m -^cc Ti^ ^"'■ m s (N Ci & cr. CO Q rH <^ H z Q (^ g rH H PL, ►; ?i IC i— 1 1 H C^ (N 1 H Tt- CO J . ^a "* ■* 5^ 1> o !" J ^ f^ m < ^ fe 'oS H X 'q3 o 5^ H a p: ^ 1 *S2 t— 1 CO (M 5i^ »o cr. 1—1 CD CO 1—1 CO C 5 -co o-g "eS S^<= 1—1 ^tc 1> i,-?^ CO ko 1— ^ "O 'e w ^ o ■"^c^ IQ 6^3 oc CO (M 00 l=.-c ^ s ^-^ »r: T-4 oc l-( Tt rt< 1> CD Q H 02 S 1^ 5 aw t '% 11 'a pn l:z 1 ^ Adult Children NOT Working ■qx LO cq t^ leiox lO CO r/:i g 3 K O y-, w K a a 3 O o c t3 ■qx ^ 1-H 1-\ (M 1— 1 I^^ox (M CO lO I— 1 T— I 1—1 T-H T-l ■qx N 1—1 CO Tt< 1—1 lO Th I— 1 i^^ox CO I> (M O) 1—1 CO 1—1 CO 1—1 10 C5 CO ONraaOjVV NaaaiiHO HXLVi saniwv^ T^iox lO 10 T— 1 GO GO 1— ( IM l^^ox 1— I I— ( 1—1 ^ CO IM C5 C5 ONIAiq NHIMOAi. ^vxox T-H Y— 1 I—I - CO ^ 00 1—1 1> CO aNisaOj^ iON Nai/\[ I> fO TjH 1—1 1— ( CO o g M H O aSBj^ ssaf]; o 1— 1 CO 83-B^ axn^g tH CO l^^ox 1— 1 C5 CO CO CO 01 LO sniait; xai\[ iviox T-H 1-i t^ C^ CO ^ t- -+1 CO sarimvj iviox T-H (M T-l CO ^ CO CO < o g Eh p U M P H Q -..1 Man Dead from Tuberculo- sis: Relief 1 Man Living — Not Tubercu- lous: Relief Man Dead — Other Causes OR Deserting: Relief I a °a3 'Z. Pp C c 67 O o u o iVO|vi ONiaaoAi ■ioni 00 00 ■ SIS HHAO iiaVTCJlS -asj^ ins KLAiONg; iojvj ^2 2- 1—1 (M o 5 T^'iOX ^f coSS C3 aaTiiHSK]^ 1-H aaTiisg o CO CO o o avxox C»?q ^!! co^' aaTirasKfi (N aaTiisg t^ 1— 1 CO 1 iviox aaTiiHSN_i (M 1— 1 aaiiisg I> 1—1 CO 1—1 s o C3 S a avxox CO-w 05^ §1 aaTiissKi o CO T— 1 o aaiaisg -* o CO Ttl avxoi 1> CO CO S3I1IKVJ ^VXOi -# t^ CO 1—1 C2 1 < O a Q Q Z p: c Z 1— ( > « O 1— ( si Q 'Z p: 1 c 68 o o SI 1-H 1-) i-( (N (N (M 1—1 1—1 !N TJH in o: "=1 «§ go 1 i-< I-l CO o o CO CO i-H 1—1 : rH 1—1 ^^ CO^ (M CO 1—1 I— 1 1—1 1—1 o o o o o • o ■ O H^ 1—1 o o 3 s Tfl CO lO CO lO : 1-1 1-1 CD Ci (M lO rh CO •* g o 1-H ffO CD 05 o 1—1 o 1—1 t- CD 1—1 1-1 1—1 TfH »o 00 lO lO lO (N r-4 1—1 1—1 CO * CO CO 3 O 9 ;=! 0) o Cm o «4-i p^ 1 o .2h P^ h o Pj? o Cm p:? 1 o "a; o ■.sH P^ CD 1 o o 1 03 o 2; "a c 2 5S 2^ H (> ) O' 3 T ri i^ 3 c: 3 ^ - G« c :> c 3 -1 ■1 o H 1 p _~ >- r. ^ 3 3_ 03 rt ^ a =33 rzz 69 LENGTH OF RECORDS COMPARED FOR SOCIAL AND MEDICAL AGENCIES Length of Record Under 6 months . . . 6 months to 1 year 1 year to 2 years. . . 2 years to 3 years. . 3 years to 4 years. . 4 years to 5 years. . 5 years to 6 years. . 6 years to 7 years. . 7 years to 8 years. . 8 years and over. . . No Social History. . Total Relief Families Social History % 7 10 10 9 7 9 2 1 9 10 74 9 13J^ IBM 12 9 12 2M 1.3 12 13M 100% Tuberculosis Clinic History 4 5 21 15 19 2 5 74 % 5 28 20 251^ W2 6M Non-Relief Families Tuberculosis Clinic History 16 11 15 7 3 7 2 1 1 1 64 % 25 17 23 11 11 2^ IM IM 100% 70 AMOUNT OF TUBERCULOSIS 35 FAMILIES STUDIED IN PART II Total Tuberculous Not Tuberculous Not Exam- ined Dead Dead Living Dead Living Cause Not Known Men 34 *12 til 3 8 Women 37 3 12 tl5 t 7 Adult Children 15 2 6 7 Children under 16 131 5 9 5 92 16 4 Total 217 20 9.2% 34 15.6% 5 116 38 17.5% 4 * Includes first husband of one woman, t Includes one relative (man's brother), j Two relatives in fractional family. 71 ^ o 1—1 '-t! :g:e:Ss§ Dead of Dead of Dead of Not exa Tb. In Laborer Dead of Not exa Dead of Liv.; tb. Dead of Dead of o tc j.< a) rt bC 03 S K fl 02 c5 ^ ^ ^ QP33 !^ o3^ P X'iS PI X O > O > > O tH ^ I CO 05 1>C0 ^^ i-O Tt< O M CO O p -*^ • fab O 02 QJ 73 faC O g^ _T3 -S^ 03 faC ^^^1 q; 0^ CD ^ CO c3 k^ v^ K> o3 c Tl T! T3 • - o a O O O d o rt IS t-1 CQ c3 H f-( ,j3 _ -•^ +^ -^^ P, 1-^3 >> K>< y k^ t>J !^ ^ !-, !^ '^ -^ O O O O O O ^^^^^^^^^^ O H CCCO 03 P! O tiJCDI>00OOOi-l (y ^ 1— ( I— I 1— I 1-1 (MiM(MCOCOCOCO-<:t<-*'* K^ i.^ ir^ cq Pi w - ,2 Or^ T3 1^5 (M ,1, Ph p-i h^l O fe S 1-1 I— I ^ 03 &^ o ' ^ o3 03 ^• in '^ 03 2 a ^ o a ^ « o 03.l-lX! 03nO uPh 03 ij c3 03 O S . HPi-qHEHp^oQ a 03 So 03 iz 72 tn bb 72 ^ — 1 ^ C! -C ^ ®* C 3 ^- ^ -_ -u ^•rj • « X c. m S 1 i-^ ? s-^ 2^^ . c c^i tt-^ ^'S? "ro . ?-( Qk^,j;j^ Iz^Z 3^^ . 2 a O ''^ c3 cc t^ ic c/D i^ lir: t> •^COO O.g r^ n^ rt _o i "rt T id ?S ^ "« ..-n^ >> '-^.O o ^«g bi) •4^ rn "o •!— « o M :3 ^x! '> 9 . . . hSi^^ . . &b Ph bflbc&ogj S £ ^ bJ3 bC P H 5t P P fl fH fH ;-i.S -3 -^ ^.^ ;h ^.S Id t3 -rJ TJ 'T3 TJ &i)'c aj a) (Ti (D O O y^._ ^'Ti'xi • CQ a2 P-i Ph >-: 1— 1 H PQ go 00 '^ TfH O (M O IC ':t<00O o: cc '^ CC ^ ^ ^ ^ •^ Tf 1 73 THIRTY-TWO WAGE-EARNERS' WIVES I. HusBAiirDs' Earnings too Ikregular to State Case No. Previous Present Remarks 32 43 51 47 35 Housewife Cleaner $3.50 Housewife Housewife Glove fact $5.00 Furs 10.00 Restaurant 5 . 00 (Womanand children serted.) Cleaner, part time. .$5.00 Janitress, cleaning part time Rent, $3.50 Sewing part time Chocolate fact $5 .00 living with man, father of Ale; indiff. 2 child, sell newspapers. Phys. disabled — tb. Ale. Dead of tb. children having de- II. Husbands ' Earnings Under $12.00 per Week Case No. Previous Presen r Remarks 63 Housewife Cleaning and wash- ing. . . $6.00 Housewife Housewife Phys. disab. Tb. 36 41 Same Housewife Dept. H. MUk part time .... ...$6.00 Depot, . . .$2.50 37 Cigar fact Housewife Housewife (andclean- er after man's death) $4.50 Liv. tb. 55 56 Cleaner ...$5.00 Phys. disab. Tb. 62 Housewife Cleaner ...$9.00 Phys. disab. III. Husbands' Earnings $12-$15 per Week Case No. Previous Present Remarks 46 Housewife Dead of tb. 53 39 31 Housewife Janitress and fact.. (During husband's Housewife Housewife Cleaner $6.00 Factory, part time . . $4 . 25 illness.) Housewife Tb. 57 Cleaning Tb. (1 son electrician, 61 Housewife $4). Dead of tb. 52 50 Janitress and rent $1.80 Housewife Laundress $4 . 50 Artificial flowers. . . .$1 .00 (1 child fact $4.50) Factory $6.00 Cleaner, part time 1 child tb. 54 33 Factory $6.00 Cleaner $5.00 Phys. disab. — tb. Ale; indiff. 74 IV. Husbands' Earnings $15 Case No. Previous Present Remarks 38 34 CL, washing.. .$6.00 (During man's illness) Housewife Folds envelopes time Cleaning Janitress and c rent + Dept. H. Milk part time part .$6.00 .S6.00 eaning .$4.50 depot, .$2.50 Indiff.; tb. 44 60 Washing $3.00 Housewife Housewife Phys. disab.; indiff. 42 Housewife Phys. disab. (1 child farmhand; keep, $1.00 per wk.) Phys. disab.; ale; indiff. Phys. disab. 40 Housewife Crochet Washing .$2.00 .$2.50 45 Washing and janitress. Rent + $5 (1st husband died of tb. Driver, $8, irreg. ; ale; indiff.) V. Husbands' Earnings Over Case No. Previous Present Remarks 64 48 49 Housewife Housewife Housewife Housewife Washing (?) part time. 3 grown sons work irreg. Housewife 75 ESTIMATED ANNUAL EXPENDITURES FOR TUBERCULOSIS The City spends : ^ For Institutional care of tvtberculosis pa- tients $1,715,485.46 For Home Care : a. Clinic treatment, visiting nursing 277,311.09 b. Public School Fresh-Air Classes.... 100,000.00 For Laboratory 14,777.50 $2,107,574-05 Private Institutions and Agencies 2 spend : For Institutional Care 60,710.90 For Home Care 310,031.10 $370,742.00 $2,478,316.05 The expenditures for Institutional Care from private sources include : Hospital and House of Rest for Consump- tives $45,401.87 Bedford Sanatorium (Brooklyn Tuberculosis Committee) 8,000.00 Bellevue Settlement House, annual cost (Belle- vue Women's Auxiliary) 5,623.16 Summer Home for Children of Tuberculous Families, annual cost (Presbyterian Hospital) 1,685.87 Total $60,710.90 The expenditures for Home Care by private agencies include : Private Institutions, for clinic nurses' and physicians' salaries $20,000.00 Philanthropic Agencies 290,031.10 United Hebrew Charities $45,404.00-!- Hebrew Sisterhoods (estimated) 20,642.00-!- C. O. S. (estimated) 25,000.00 A. I. C. P.: In patients' homes $15,738.00 In Home Hospital 45,102.78 Outside contributions for Home Hospital 1,629.92 62,470.70 Joint Tuberculosis Committee 43,433-00 Auxiliary Funds, to Tuberculosis Clinics.... 44,555.40 1 1914. - Last fiscal year's figures available at time report was prepared. 76 Bellevue (1915) $8,827.80 Relief $6,567.17 Salaries 2,161.88 Sundries 98.75 Health Department (1915) 18,275.56 (Includes Day Nursery, $6,905.34) N. Y. Hospital 275.00 Presbyterian Hospital 7,848.48 (Includes salaries, $2,700) St. Luke's 7S3-00 Vanderbilt 8,575.56 (Includes salaries, Day Camp and Clinic) Brooklyn Bureau of Charities 30,026.00 Brooklyn Jewish Charities 18,500.00 Total $310,031.10 Excluding the amount spent by subsidized private institutions over and above the per capita payments made to them by the City, we can summarize the annual cost of the care of tuberculosis to the City of New York, contrasting the amount spent on Institutional Care with the amount spent on Home Care as follows : Institutional (chiefly medical care) : By the City $1,730,262.96 By private agencies 60,710.90 $1,790,973.86 Home Care (medical and social and relief) : By the City $377,3ii.09 By private agencies 310,031.10 687,342.19 $2,478,316.05 77 THE TROW PRES NEW YORK DUE DATE Ar' -ir^^ )] ^ihiiJ - Oct'[l^Qo^ ir HY "it the wing, il ar- Printed in USA COLUMBIA UNIVERSITY UBRARIES 0022318917 iji